Siren Leads Workshop on Leveraging Social Media at CBI's Rare Disease Leadership Summit

The CBI 4th Annual Rare Disease Leadership Summit will be held on July 15 -16, 2009, in Arlington, Virginia. Siren will sponsor and lead a pre-conference workshop, Health 2.0: How Empowering Patients Can Lead to Increased Patient Acquisition, that focuses on current research and case studies in patient empowerment and social media usage that support the potential to reach niche, rare disease patient communities. Biopharmaceutical marketers must learn to appropriately engage their patients through social media and influence the conversation. This workshop will demonstrate the power of this medium and showcase how it is being used to connect patients with each other and to the products and organizations that support them. It will also provide a process for identifying your most promising opportunities and some useful tools that can help you sell this medium within your organization.

Key Questions to Be Addressed:

  • Why is patient empowerment so important to the rare disease community?
  • How are patients using the internet and social media to educate themselves about their disease and therapy options and to support each other?
  • Why should your brand have a social media strategy?
  • What are the key considerations and success metrics in developing a social media strategy?
  • How do you manage the risks and regulatory issues associated with social media?
  • What role can your patient advocacy groups play in executing on your social media plan?

Workshop Faculty:

  • Wendy White, President and Founder of Siren Interactive
  • Mary Dunkle, VP Communications, National Organization for Rare Disorders
  • Amy Waterhouse, VP Regulatory and Government Affairs, BioMarin Pharmaceuticals
  • Pat Furlong, Founding President and CEO, Parent Project Muscular Dystrophy

The CBI Rare Disease Leadership Summit brings together leaders from industry, government and patient communities for networking and sharing best practices about the most recent developments related to rare disease issues. Topics this year will include the latest regulatory policy, clinical strategies, patient outreach, and commercialization dynamics impacting orphan drug development in the U.S. and EU. Please visit the CBI website for details and registration information. For a $300 discount on registration, use the promotional code GRX292.

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